Ochsner Community Advisor Network (OCAN)
Join our network of Patient Advisors!
We are looking for Ochsner patients and community members to share your reactions and opinions.
We are looking for Ochsner patients and community members to share your reactions and opinions. Give us constructive feedback on research-related activities at our quarterly video meetings (Full Board Members) or through online surveys and email (All Members). Nominate yourself or others by May 31, 2021.
Important News
We've changed our name. Our network advisors voted and we are now the Ochsner Community Advisor Network, formerly the Ochsner Patient Research Advisory Board. We are structured into two groups, Board Advisors and our Public (Adhoc) advisors.
Next Board Advisor Meeting: October 13 2021
We've gone virtual!
- To get your materials and ideas presented at an OCAN meeting, for formal feedback, we'll need 10 days advance notice.
- If you have want patients to give a reaction to the look and language of brief set of materials (e.g. flyer, survey), then email us at least 3 to 5 business days ahead of your deadline.
Why Patient Advisors for Research?
It's one way to keep patients at the center of why and how we do research. Patients-first research is necessary to deliver what patients need and addresses their preferences. We can do this in a way that makes sense for patients and their families. Service. Members are a voice for themselves and the community.
How Does the Feedback Session Work?
The Research Team presents its research and asks patients for general reactions or specific feedback.
OPRAB members answer according to expertise as patients and/or caregivers and share additional concerns. The Research Team answers their questions and clarifies any information.
The OPRAB feedback is summarized and returned to the Research Team. The Research Team decides what ideas to act upon and may return to the OPRAB for additional collaboration.
Patient Communication Resources
Ochsner Patient Research Advisory Board co-sponsored a Best Practice Sharing Session for Patient Centered Informed Consent. |Click her for the PDF of the presentation slides.
- NIH CLEAR COMMUNICATION
- NIH WHAT ARE CLINICAL TRIALS
- IOM INFORMED CONSENT AND HEALTH LITERACY TOOLKIT
- HEALTH LITERACY UNIVERSAL PRECAUTIONS TOOLKIT, 2ND EDITION
- LACATS HEALTH LITERACY CORE TOOLKIT
- RISK COMMUNICATION INSTITUTE VISUAL AID TOOLS
- OCHSNER CLINICAL RESEARCH INFORMATICS –E-CONSENTING CONSULT
- CDC EVERYDAY WORDS FOR PUBLIC HEALTH COMMUNICATION
CONTACT US
The process is simple. Contact Jewel Harden-Barrios to review your request. We'll decide if a virtual review by email or by web-conference of your project is appropriate and set a timeline.
Jewel Harden-Barrios
Center for Outcomes and Health Services Research
504-842-8604 | cahsr@ochsner.org
